The mission of The Super Jake Foundation is to fund research to find a cure for neuroblastoma more...
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Neuroblastoma is a childhood cancer, which usually strikes children
before the age of five and originates from neural crest cells more...
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Jake was just three years old when he was diagnosed with stage 4, fully metastasized neuroblastoma more...
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- Neuroblastoma is predominantly a cancer of early childhood, with two
thirds of the cases presenting in children younger than 5 years.
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Neuroblastoma is an extremely rare cancer, affecting 10 children out of every million per year.
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In the U.S., approximately 650 new cases of neuroblastoma are diagnosed each year.
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Neuroblastoma accounts for 5-7 percent of all childhood cancers.
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Approximately 1 in 6,000 children will be diagnosed with neuroblastoma by the age of 5.
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Neuroblastoma originates in the adrenal medulla or the paraspinal sites where sympathetic nervous system tissue is present.
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- The cause of neuroblastoma is unknown. Studies have shown that genetics and environmental factors are not involved.
- 40 percent of neuroblastoma patients are younger than 1 year when diagnosed, 35 percent are aged 1-2 years, and 25 percent are older than 2 years when diagnosed.
- Approximately 70 percent of patients with neuroblastoma have metastatic (spread) disease at diagnosis, most often to the lymph nodes, bones, bone marrow, liver, and skin. These cases are categorized as stage IV and have a less than 40 percent chance long-term survival. A significant portion of these children will relapse.
- There are no FDA approved drugs approved for the treatment of neuroblastoma. Treatment often requires a combination of surgery, traditional adult chemotherapy drugs which are approved for other cancers, bone marrow transplants and radiation therapy.
- The five-year survival rate for high-risk cases of neuroblastoma is less than 40 percent.
- Children with relapsed disease have a very poor prognosis for survival.
More information about Neuroblastoma
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- Ronald McDonald House Charities
- Abbott
- TAP Pharmaceuticals
- Takeda
- Aileen S. Andrew Foundation
- Astellas
- Drinker Biddle Gardner Carton LLP
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- Johnson Marketing Communications
- Dawn & Dave Ludden
- Annette & David Macari
- Studio West Photography
- RT Associates
- The Bond Group
- 101.9 FM The Mix
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For more information send an email to info@superjakefoundation.orgOr write to: The Super Jake FoundationP.O. Box 477 Gurnee, IL 60031 Phone: (847) 625-0436 Fax: (847) 625-0224
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Become a Volunteer
To volunteer, send an email with your contact information (including name, address, home phone, fax, cell phone and email address), along with your volunteer interests, to: volunteer@superjakefoundation.org
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