Meet Sawyer!

It is our pleasure and privilege to introduce you to our newest, first-time Super Jake Hero Grantee, Sawyer. 
 
He’s 8. He’s cute. And yes, he’s got a brother.  He goes by Super Sawyer. And he’s got a super smile, super supportive family, and he’s on a super mission to raise funds to purchase play tents for other children confined to hospital beds while undergoing treatments. 
 
He’s quite accomplished for an 8-year-old. 
 
And we at the Super Jake Foundation get the great honor to help him and his family while they are in the throes of cancer treatments. What an absolute honor this is!




Memorial Day 2022

At 2 p.m. CT on May 27, 2005, our sweet boy took his last breath. We were at home…in his bed…on his Spider-man sheets…with his baby sister by his side. Even though he had been fighting a deadly cancer for 15 months, we weren’t prepared. We still held out hope. We thought he was going to be one of the lucky ones. We were wrong.

Time is a funny thing. Grief is even funnier.

In some ways, it’s like no time has passed. If I close my eyes, I can conjure up his image. And I can replay videos in my head of happy times together. In my mind’s eye, I can see and hear Jake asking for a cheeseburger with just the meat and the cheese from Old McDonald’s. Or I can picture him lining up his super hero figures to play “Good guys vs bad guys.” In his world, the good guys always won. I prefer to remember it that way and I still work hard to stuff the sad times way down deep.

Other days, it feels like he has been gone for so very long. He never got to meet his little brother, Parker, or his baby sister, Riley. He didn’t graduate from Kindergarten or ever ride on a school bus. He never went ice skating or asked a girl to prom. He won’t graduate from high school or go to college. As we reach and pass these milestone moments with our other children, Jake’s absence is deeply felt…making joyous moments always feel “less than” somehow.

While his body left us many years ago, his spirit remains alive and well in our home…and in the work we do with all of you through The Super Jake Foundation.

I wish I could say it was enough. That, as time passes, the hole in our hearts…and in our lives…starts to close. But that would be a lie.

As more time passes, we feel his absence even more if you can imagine. Why isn’t he here to give Parker dating advice or practice soccer drills with Riley. Maybe he would have been the one to teach Taylor to drive.

The wishes and wonders are endless. We wish he was here. We wonder what he’s doing. We wish we could have one more day with him. We wonder if he can see and hear us. And, our biggest wish of all…we wish we could have saved him.

It seems fitting, somehow, that Jake died on Memorial Day weekend. During a time that we honor the brave men and women who fought for us, we remember our biggest hero whose courage and bravery continue to guide how we live our lives. He  taught us to love deeply and fully and that every day is a good day to wear a super hero costume.

We love you and miss you all the days of our lives, sweet Jake. On this, and every Memorial Day, we focus on the love we shared and the happy memories we made together.

 

 

Factual Friday the 13th

Friday the 13th is considered a scary and unlucky day. Being diagnosed with neuroblastoma is also scary and unlucky. Did you know? The average age of children when they are diagnosed is about 1 to 2 years. Rarely, neuroblastoma is detected by ultrasound even before birth. About 9 out of 10 neuroblastomas are diagnosed by age 5. It is rare in people over the age of 10 years. #factualfriday #themoreyouknow #morethan4 #donatetoday